Monday, April 28, 2008

Aunt Angie

This weekend my sister came to town for a visit. The last time she was here, baby Doug was just about 2 weeks old, so it was nice for her to see in person, how much he has grown. He loved his snuggle time with her and like his sisters, will love his Aunt Angie.
Doug was 6 pounds and 1 ounce today and they increased his bottle feedings to 6 on Sunday. He seems to be doing very well with them, as you can tell in the video below. The doctor said today that he is very close to discharge and they are going to increase his bottle feeds to the full 8 tomorrow.

Saturday, April 26, 2008

Closing in on 37 weeks and 6 pounds

Not much to say today except Happy Birthday to Harry. We're headed to our last crawfish boil party we'll ever go to without Douglas to celebrate. He's hangin in there at 5lb 14 oz and doing well... we're just waiting as patiently as we can for him to get to all bottle feeds and no apnea. Its getting pretty old, especially for Melissa who goes twice a day nearly every day, but we can see the light at the end of the tunnel, and I think Doug can too.

Also my Grandmother Fay "Damaw" Schuler passed on earlier this week, which I'm sure was a great relief to her. I like to think she can finally see her new great grandson now, and smile down in peace. Maybe she even gets to meet his namesake, who I like to think is also smiling down, maybe having a laugh with his two Grandfathers. Wherever they all are, I hope the fishing is good.

Big thanks to my sister Lisa for flying into Shreveport from Puerto Rico to be with our mom and help get everything taken care of. We expect to see "Meems" in Austin soon now, with any luck just about the time Duggie comes home.


Wednesday, April 23, 2008

Our Boy


I just wanted to give you guys an update on Doug's progress and on the countdown to his homecoming. He's up to 5 lbs. 13 ounces, as of last night. Today the doctors decided to back off of his bottle feedings a bit because he was showing sign of tiring out. They went from 6 feeds to 4 feeds by bottle, giving the other 4 with his feeding tube.
They'll try this for a couple of days and then go back up to 6 feeds and see how he does. We are still hopeful that we'll be able to bring him home in a couple of weeks.


Monday, April 21, 2008

5 lbs 10 oz and counting




Just a super quick post today... nothing much new to say after my essay last night, but I did get a special treat today when I visited at lunchtime... he was wide awake! I hardly ever get to see him this way, since our schedules have me coming up usually just after Melissa has breast and bottle fed him, and he's generally in a milk coma. Not today... he was as awake as could be, so I really got to go over some things with him. It was a great chat, and long overdue.

Anyhow, enjoy the video, and make sure the volume's up for the grand finale.




Sunday, April 20, 2008

Slow n Steady

Hello, friends of Lil Duggie. Sorry we've been a bit remiss this week in our updates ... things have been pretty hectic for us, and pretty happily uneventful for Douglas. He's up to 5 pounds 9 oz today, after a couple of days at hangin in at 5, 7. He's also taking 6 of his 8 daily feedings by bottle, and breastfeeding for 15 mins twice a day ahead of a bottle feeding.

All this progress had us getting a bit nervous and excited that he might get up to all 8 feedings by bottle with no apnea and that we might be looking at bringing him home as soon as next weekend. However, he's had an apnea spell each of the last 2 days, which isn't a big deal, but tells us that the 6 feedings a day by bottle are wearing him out, and that the last of the caffeine they were giving him before is almost totally out of his system now. For all us addicts out there, we know that can be pretty hard by itself.

We'll talk to his 'real doctor' tomorrow, but for now we're feeling like it'll be probably 2 more weeks at least before our little guy is headed for home. He'll be 36 weeks of gestation age tomorrow, so we have to keep remembering that he was still meant to be "cooking" for another month almost. The twice a day visits are starting to wear his mother down a bit (we live 25 minutes from the hospital) but we are of course very happy that this is the extent of our problems with our boy right now... many NICU parents aren't nearly as lucky.

While we are waiting, we had our last big silly house party this weekend since that sort of thing will be out for awhile once he comes home, and it was a very nice break in the routine. We're also getting the house and Doug's room ready for his arrival ... our 'nesting' period was a bit thrown off kilter by his dramatic entry into our lives.

Thanks for reading, and we'll try to post more regularly for the home stretch. In the meantime, here's a cute little vid that mommy snuck yesterday before the camera died.




Wednesday, April 16, 2008

Feeder/Grower



That's what they are calling our boy these days. He has no more real medical concerns and is simply working on taking all of his feedings by bottle. He officially moved over to the feeder/grower section of the NICU last night, which is a nice change for us and the last step to discharge. He's up to 5 pounds and 7 ounces and is taking in 4 of his 8 feedings by bottle. I'm still getting to breast feed before two of those feedings and it is going very well. Endurance is the name of the game right now. He just needs to gain the strength to take the bottle more, which will come with time. His doctors say he should be coming home in 2 to 3 weeks. His sisters can't wait to finally meet him!

Sunday, April 13, 2008

Fat n Happy for Mommy's Birthday

First off, happy birthday to Melissa today! Douglas gave her an extra special treat of a gift
yesterday by breaking through the
5lb mark (he's at about 5lb 2 oz already today) AND getting the nasal cannula off so that there is *nothing*, absolutely nothing hiding that sweet face of his.

Maw got to breast and bottle feed him and fully take in the wonder of these suddenly huge, round, sweeter-than-sugar cheeks before we snuck off for a night away at the wonderful Hyatt Lost Pines resort just outside of Austin. While not exactly Fiji, it sure felt like we were a world away, and mommy got to enjoy a 'vacation day' away from the hospital and house for 24 hours, fully able to relax knowing the little man was doing so well.

We grabbed a coffee this morning and left the resort to go straight to the hospital in time to breast and bottle feed again. He's doing this combo-feed now twice a day, and doing two other bottle-only feeds, which makes 4 of his 8 daily feeds tube and machine free. As you can see in the
pix above and video below, its so incredible to get to see his full face during our whole visits, now that the cannula is off. And, as we suspected, he didn't need it at all anymore... he's breathing great and hasn't had an apnea spell in three glorious days.

Suddenly we're in a bit of a fire drill to get his room and the rest of the house ready for our boy to come home... we haven't been told to expect anything sooner than the end of the month, but it sure seems like the way he's going they might send him home any day now.

All fire drills aside for now, we are heading out to a nice dinner with the girls to continue celebrating the birth of the world's greatest wife and mother, before she goes back to the hospital to finish the celebration off with some more one-on-one time with her newest wonder.


Thursday, April 10, 2008

perfect timing (by Aunt Shelley)

lucky me arrived at the hospital with perfect timing today. beautiful baby dougie had just had the biggest poop of his life, all over his daddy. you wouldn't believe the volume that came from this child, a testament to the fact that he is a strapping 4 lb 13 oz (maybe less after that poop) boy that eats and poops like a champion.

this child is a far cry from the frail, tiny boy i met days after his birth- we knew his spirit was strong but it's amazing to see his physical transformation. his body is catching up with his spirit. he's incredible. during my visit he was animated, alert, gooing, smiling, farting- all the wonderful things babies do. best part for me was the poop though. seriously, he s*** all over mike so he couldn't hold him after the nurse cleaned him up. he was far too poopy to hold dougie and there i was waiting with open arms. the lucky first person to hold him besides nurses, maw and paw. wow.

they say timing is everything. i believe it. i spent half an hour chatting up our boy. what could possibly be better? maybe watching mike squirm and gag covered in s*** until maw arrived with a clean shirt. no, that paled in comparison. holding that boy was magic.

******* Being the editor of this here Family-Friendly Blog, I took the liberty of editing Aunt Shelley the Sailor's post a little, and adding the video below, (no idea why it's rotated sideways) where you can see Douglas really checking her out ... his eyes say "You're not mommy or daddy... but you're definitely somebody who loves me." ********* --- Paw



A Note From Tamara


Our dear friend, Tamara Haskins asked me to post her comments after she visited the hospital a few days ago. I also wanted to correct a HUGE misprint from yesterday. Duggie weighed 4 lbs. 11 ounces yesterday, not ten. ;) Today he is at 4 lbs. 13 ounces. I bet he hits 5 pounds by the weekend! He also doubled his intake with the bottle last night. He took in 30 of his 44 cc's and they dropped his oxygen pressure down to the lowest possible setting and he's doing great.

Melissa, I must tell you again how truly adorable your precious little
miracle is. Everything being so tiny makes him even cuter...those lips and
cheeks, the wee hands and that precious pointy ear. He's perfect. I loved
the way he would try his very best to look up at his Mommy. He was so
content there on your chest. He knows he is loved. And you looked so
radiant and happy holding your little man. I'm so glad I finally got to
see him. Of course I'll continue to check the blog daily. After he comes
home and he gets a little bigger I'll show him all the 'tricks' that big
sisters love!!

Love
Tam

Tuesday, April 8, 2008

4 pounds TEN ounces


We're not playin. This little dude is growing like crazy.

He got to do a little bottle feeding this morning, and a little ninny nuzzlin tonight, which will be his new routine for awhile now, as we begin to wean him off of his tube feeding and his breathing support. He's holding his body temp just fine, and self-correcting any apnea spells. We still have a long road ahead of us, and lots to learn I'm sure, but we are definitely in the home stretch of the NICU time, and that is a very good thing.

Check Doug out, checking us out, in the video below.


Monday, April 7, 2008

the threads that weave the net

We'd planned for some time to be in Austin during SXSW last month, and of course Mike and Melissa and the girls were planning to have us stay with them-who would the Wilson's be if not fantastic hosts?

Then we got word about Doug, and immediately thought to beg off. How could the Wilson's possibly handle a house full of guests--among them a 4 month old baby girl--while handling all that was crashing in on them? And on top of it, Mike's biggest work project of the year, that same week? No way, we thought. We'll get a hotel. Something. Anything but be a burden.

But they insisted, and so we came, and what we saw still makes me smile. Not Doug, although he is remarkable and beautiful and a tiny, 4lb. miracle. No, what I'll remember most from that week in Austin was what a real community of love looks like.

It took a while to notice--Mike and Melissa are always preternaturally low key; it must be something in that Cajun water. But they never seemed to be nearly as concerned as we knew they must be.

The answer came a few days later. As we hung around early one evening, first one friend, then another, came in delivering food and desert. It was a simple thing, but powerful: you don't need to worry about food on the table, it's taken care of. Deaven and Halen hardly noticed, so used were they by now to friends and loved ones coming in the door to help their family in a time of need. But it stuck with us--look at that, we marveled, a daily delivery of love, and support. A simple thing, but profound, and all too often missing.

We all hear a lot of talk about safety nets, about how people fall through them. But what we were witnessing was that rare time when people are caught and saved by the safety nets in their lives. And this net was being woven, one meal, one dessert at a time, by threads in the form of their friends. None alone could bear the burden of helping the Wilson's in their time of need. But all, together, bore them so effortlessly that they could relax a bit, enjoy their guests and a temporary distraction from their worries, get on with the business of dealing with our complicated modern lives, and most importantly, giving their son the undivided attention and love that he needs right now.

The generosity of their friends was matched by the Wilsons in receiving it. It is a gift--truly--to give someone the gift of letting them help. Melissa and Mike, in their hour of great need, could have gone the easy, insular route: lots of take out, Domino's on speed dial. But by allowing the people that care about them to express their love and support, and trusting in it, they're allowing that rarest of things--real, genuine community--to spontaneously coalesce around their family. And in so doing, reminding everyone just what it means to really be there for the people who need us, how easy it can be to help, and how good it can feel to be that person.

Tonight, in the hospital, little Douglas Wilson lies sleeping, dreaming. I wonder if that rest is made better by knowing, somehow, intuitively, of the breadth and depth of the love that surrounds him? If as his chest rises and falls, he can feel the soft, unbreakable bonds of the net woven under him, by all the family that claims him as their own?

When my time came last month to see Doug in the hospital, I was awed, certainly, by his small size and frail thin body, though perhaps not too much owing to our own infant daughter. What was even more striking to me, however, were his parents. I couldn't help being surprised by how relaxed and focused they were. Concerned, yes, and certainly very busy, but able to be so in the moment of caring for Doug, and so open too to engaging with others--and I realized that's because just like Doug, they knew that there was someone there to catch them. Namely, all of you.

The threads we all spin, weaving the net of family, of community, of hope in times of trial, reach places we never imagine. Today, here in San Francisco, a similar "Care Calendar" got launched for our friends Tony and Mel, who just had twin boys, inspired by the one created for the Wilsons. Within hours, eight slots were filled up, and by the end of the week no doubt dozens will be. Your actions there are inspiring others, even all they way out here.

So to all the friends and family there in Austin supporting the Wilsons, thank you from those of us who can't be there in person. And thank you for giving them the love they so richly deserve. Doug is a very lucky boy, in so many ways, and growing up in a place like that, amidst people like you, is very high on the list of reasons why.

Sunday, April 6, 2008

A New Bed For Doug



Yesterday when we arrived at the hospital we were greeted with a nice surprise. Baby D had been move from the isolette to a baby bed. He's been maintaining his temperature very well and this is a big milestone for him. They have also lowered the pressure again on his oxygen flow, so he is another step closer to being off of the nasal cannula. We didn't try any bottle feedings this weekend, so hopefully we will start this week. He's up to 4 pounds and 6 ounces and is really starting to fill out his preemie clothes.

Saturday, April 5, 2008

Spring Training!




Doug has had a great week! He's has had very few apnea episodes and they even decreased the pressure on his nasal cannula a bit and he has handled it very well. He is up to 4 pounds and 4 ounces already and we are hoping we can start to feed him a little this weekend. As you can tell from the video, this week of spring training is complete! He's well rested and the binky practice has never been better. We have also started to visit him twice a day, holding him for a couple of hours at a time. He seems to love the kangaroo care and tolerates it very well, sleeping most of the time.

Thursday, April 3, 2008

4 Pounds and 1 ounce!!!


I called this morning and found out from the nurse that our Duggie finally reached the 4 pound mark last night at weigh in. He sure has come a long way from the 1 pound and 14 ounces he weighed at birth. The doctors had increased the pressure on his nasal cannula a couple of days ago and were worried they might have to put him back on the c-pap. However, he's done amazingly well with the small increase and has spent the last three days resting and growing, with very few breathing episodes. They have also decided that some of his apnea is being caused by reflux. Most preemies have a little reflux and usually out grow it with no medication needed. We have continued to visit once a day and holding him for only an hour, hoping he can rest and not use up too much of his precious energy needed for breathing and growing. Most preemies get to go home between 36 and 40 weeks gestation and our boy will be 34 weeks on Monday. He still has a few big milestones to go but I feel like we have rounded the corner and are entering the home stretch!