Monday, November 24, 2008

Just a quickie to say hi


To the few folks still asking for updates and pix on here. :) I've decided just to upload some new pix every now and then. Feel free to email us anytime for pix too... we just don't think about this Blog much anymore, although it was helpful to some parents in a similar situation just last week. So I guess it's good it's still up. Good luck Jacob Jackson! You'll be fat and happy like Doug in no time I'm sure.

Doug is getting his first tooth, which looks like it might come in solo, bottom front. We're pretty excited about the prospect of this, especially if it's just the one for a bit. :) He's eating homemade babyfood once or twice a day in between chugging formula, and smiling nearly the whole time he's not eating. This week we're taking the family to Shreveport, where Doug has some aunts, uncles, and cousins who are dying to finally meet him in person.

Here are a couple of good recent pix. Happy Thanksgiving everyone, and thanks for helping us be so thankful for the little miracle boy this year.

Friday, October 10, 2008

Baby LOVES his Bath



As you can tell from this video, Doug loves his bath time. He's up to 15 pounds now and is doing great. He's laughing out loud and even eating a little bit of baby food once a week. He rolls over on his stomach easily but then usually gets frustrated because he can't quite make it over onto his back again. His big sisters are completely in love with him. Big sis Deaven even says that coming home and seeing him after school is by far, the best part of her day. He is a very good baby, sleeping well throughout the night and he's so happy most of the time. We've traveled to the west coast with him three times so far, and he is a great traveler. Now that flu and cold season is upon us, we'll be staying close to home with him and away from crowds. His eyes are still blue (like Mike's dad), but we know there is a chance they will change. It would be nice if they stayed that color though.
Now that we are sitting still for awhile, I'm hoping to update the blog more frequently, especially through the holiday season. We have so much joy to look forward to and continue to feel blessed every day that we wake up to this beautifully perfect smiling baby boy. His namesake would be so proud, in fact, I'm sure he is.

Wednesday, July 30, 2008

Happy Baby


Hello to the few family and friends who are still periodically checking this blog. We are continuing to put an update up about Doug and our family every month...even though sometimes we are a little slow at it.
We are all doing very well, and Doug is GREAT. He had his first plane ride a few weeks ago. Mike had to go to L.A. for business, so we packed up the family and made it a week long vacation. Doug did great on the flights and during our stay. He's up to 12 pounds now and smiling a lot, which totally melts our hearts every time. He's eating well and even sleeping through the night, which is very lucky for us. His corrected age(according to his actual due date) is about 9 weeks old, and he is doing all of the things he should be doing. He even turned over a couple of times when we were in L.A.. Attached is a great picture of him smiling at the Santa Monica Pier.

Monday, June 23, 2008

Family Vacation!!





Our boy has been home now for a month and a half and as you can see in the photos, he's doing great. He even went on his first vacation...a road trip to the beach in Florida with a quick stop in New Orleans. He did great and finally got to meet his meems, who joined us on this adventure. We spent several days soaking up the sun in Panama City Beach, but Doug did spend most of his time in the air conditioning condo bonding with meems. I'm not sure of his exact weight right now(he's due back at the doc tomorrow), but I'm guessing it is close to 11 lbs. Everyday he is awake longer and more and more alert. His sisters are totally in love and spend a lot of time fighting over whose turn it is to hold him. He's already scheduled for his next big trip...he's headed to L.A. with us next month to meet a few of our very close friends on the west coast.
We'll continue to update the blog periodically for friends and family and please come visit us in person whenever you can.
xoxoxo
MAW

Friday, May 23, 2008

Life goes on!!


Hey everyone! It's been awhile now but I see that a lot of you are still checking in (what amazing friends and family we have!) so I thought I'd do a quick post.

Douglas continues to grow and do great... he's at 8 lbs, 3 oz as of yesterday, and is doing what babies do... sleeping, eating, and growing. And lighting up everyone in the room in between. :)

Life at the Wilson household has resumed some sense of normalcy (as close as we ever get) ... it's been a big 10 days or so around here for the family as a whole.

As you can see above, Deaven went to her junior prom last week, in a REAL PROM DRESS and everything (she even pulled up her dreads to look all sophisticated). Her mom and Douglas were not her prom dates, but this is Doug's site, so that boy will just have to deal! We are still in amazement that our first little baby is now taller than her mom (only in serious pumps!) and it's really something trying to remember that she was smaller than lil Duggie is now.

This week Halen turned 11 and Deaven turned 17. Douglas turned zero, as he was originally due this week as well. We had nice family birthday dinners with Mamaw Judy and Ray included Wednesday and Thursday, and both of them are having their birthday celebrations with their friends tomorrow. And so tonight, as you can see in the video below, we are stealing some wonderful time at home, doing alot of nothing. Doug and especially Mommy seem to approve.

Take care everyone and we hope to hear from you all soon.

paw

Sunday, May 11, 2008

Happy Mother's Day


Apparently there are a bunch of folks still lookin for Duggie updates... and why not? I guess happy news is the best news of all.

His first week at home has been wonderful in so many ways. Some highlights include another good checkup with the ophthalmologist on Wed, hitting 7 lbs at his first regular pediatrician checkup and going to his first softball game (Halen's) on Thursday, having dinner at his first restaurant with Uncle Rob on Friday, and going to his first party (another great crawfish boil with the Miller's) on Sat.

Today we had a day out and about with the family for Mother's Day, and he got to meet the rest of his wonderful Kennard family from Rockwall. And then tonight his amazing big sisters kept him for a few hours so I could take mommy out for a little dinner-and-a-movie time alone.

Our thoughts and love are with my mom, still dealing with the loss of her mother in Shreveport, and her first Mother's Day without her today. I spoke to her the other day and she has an awful lot of stressful stuff going on, but sounded in her typically good spirits despite the circumstances. We know that we will see her soon, either here in Austin for a nice long stay or we'll bring the baby for a tour of friends and family in Shreveport.

We probably won't be blogging as much as we have been now, since things are back to normal somewhat, but I know that so many of you have sent so much love our way and so much strength to our young son, please don't hesitate to call or email if you ever want a Duggie update or for any other reason. This has been such a tough time for our family, but a really inspirational one and reassuring as well, to be reminded of what an amazing community of loved ones we have around us for whatever comes.

We look forward to being the ones lending an ear or a hand next time any of you need it.

Here's a nice little video that shows off Douglas livin it up in his bassinet at nap time, listening to some New Orleans playground music.




Tuesday, May 6, 2008

BABYDAY

Awhile back, I was lucky enough to be staying at the Wilson home when a call came one quiet evening during a staring contest with Tits the cat....it turned out that instead of heading for Fiji, Maw was heading for some emergency baby time. Deaven and I raced over to the hospital just in time to see fairly flustered but firm-fisted Mr. Douglas (whom I had already randomly nick-named Avalanche) enter the world.

I'd just arrived for another visit this week when word came that after a legendary hospital tour, Avalanche would be making his debut as a full-time resident of Lost Oasis Hollow...

Instead of trying to describe the moment, I'd rather invite you to check it out here:

http://cityfish.org/Babyday.mov

Sunday, May 4, 2008

Seven Years to the Day

For those of you who don't know what I'm talking about, it was seven years ago today that I posted quite possibly the saddest message of my life to the Internet, trying to get the word out to friends and family, many of the same people in fact that have been keeping up with this blog since Feb 15, that Doug Myres had left us just before midnight the night before.

It somehow seems no strange coincidence that today I get to post a very happy message, to tell you that our son gets to come home tomorrow. We got the word today from Dr. Dekowski that his breathing studies looked really good and that Douglas is all clear to come home, and will not be needing a monitor sent home with him, which is a great relief. Maw and I are headed back up there in a few hours, hopefully for the very last time we'll ever need to visit St. David's Hospital, and especially the NICU. We will spend the night there with Doug in a special room they have set up like a hotel room, with no monitors, nurses coming in, etc. A little dry run to make us all feel better about bringing him home tomorrow morning and doing the same thing with him at home tomorrow night.

I suppose in the back of my mind, at least for the last couple of weeks, I was wondering if little Doug might get sent home today, because as soon as we got word this morning, my thoughts turned to the calendar and to our long lost friend whom we proudly named our son after. While we were visiting the hospital earlier today, I was reading some of the letters from Doug's memorial site, which still bring the tears as quickly today as they did seven years ago. We still miss Doug in our family and extended family deeply every time we think of him, and he still serves as the greatest inspiration for how we will attempt to raise this special boy who has fought so hard to get here.

Here are a couple of pix ... one of Douglas the day after he was born and one we took today just before waking him up to breastfeed. Pretty crazy stuff. Thanks to all of you who have been so amazingly supportive to our family through all of this, and we will keep you posted on how things go when he comes home. I hope all of you who haven't gotten to meet Douglas can come see him soon.

Paw


Friday, May 2, 2008

Almost Home


We are so close to finally bringing Doug home. He's up to 6 pounds and 5 ounces and looks great. When I visit it is hard to resist bundling him up and taking him home with me. Every day he is getting better and better with his 8 bottle feedings. He also had the head MRI that the docs said he would get before discharge and everything looked great. Dr. Dekowski told me yesterday that he would be coming home next week! Of course these last few days seem to be crawling by. We'll keep you posted!

Monday, April 28, 2008

Aunt Angie

This weekend my sister came to town for a visit. The last time she was here, baby Doug was just about 2 weeks old, so it was nice for her to see in person, how much he has grown. He loved his snuggle time with her and like his sisters, will love his Aunt Angie.
Doug was 6 pounds and 1 ounce today and they increased his bottle feedings to 6 on Sunday. He seems to be doing very well with them, as you can tell in the video below. The doctor said today that he is very close to discharge and they are going to increase his bottle feeds to the full 8 tomorrow.

Saturday, April 26, 2008

Closing in on 37 weeks and 6 pounds

Not much to say today except Happy Birthday to Harry. We're headed to our last crawfish boil party we'll ever go to without Douglas to celebrate. He's hangin in there at 5lb 14 oz and doing well... we're just waiting as patiently as we can for him to get to all bottle feeds and no apnea. Its getting pretty old, especially for Melissa who goes twice a day nearly every day, but we can see the light at the end of the tunnel, and I think Doug can too.

Also my Grandmother Fay "Damaw" Schuler passed on earlier this week, which I'm sure was a great relief to her. I like to think she can finally see her new great grandson now, and smile down in peace. Maybe she even gets to meet his namesake, who I like to think is also smiling down, maybe having a laugh with his two Grandfathers. Wherever they all are, I hope the fishing is good.

Big thanks to my sister Lisa for flying into Shreveport from Puerto Rico to be with our mom and help get everything taken care of. We expect to see "Meems" in Austin soon now, with any luck just about the time Duggie comes home.


Wednesday, April 23, 2008

Our Boy


I just wanted to give you guys an update on Doug's progress and on the countdown to his homecoming. He's up to 5 lbs. 13 ounces, as of last night. Today the doctors decided to back off of his bottle feedings a bit because he was showing sign of tiring out. They went from 6 feeds to 4 feeds by bottle, giving the other 4 with his feeding tube.
They'll try this for a couple of days and then go back up to 6 feeds and see how he does. We are still hopeful that we'll be able to bring him home in a couple of weeks.


Monday, April 21, 2008

5 lbs 10 oz and counting




Just a super quick post today... nothing much new to say after my essay last night, but I did get a special treat today when I visited at lunchtime... he was wide awake! I hardly ever get to see him this way, since our schedules have me coming up usually just after Melissa has breast and bottle fed him, and he's generally in a milk coma. Not today... he was as awake as could be, so I really got to go over some things with him. It was a great chat, and long overdue.

Anyhow, enjoy the video, and make sure the volume's up for the grand finale.




Sunday, April 20, 2008

Slow n Steady

Hello, friends of Lil Duggie. Sorry we've been a bit remiss this week in our updates ... things have been pretty hectic for us, and pretty happily uneventful for Douglas. He's up to 5 pounds 9 oz today, after a couple of days at hangin in at 5, 7. He's also taking 6 of his 8 daily feedings by bottle, and breastfeeding for 15 mins twice a day ahead of a bottle feeding.

All this progress had us getting a bit nervous and excited that he might get up to all 8 feedings by bottle with no apnea and that we might be looking at bringing him home as soon as next weekend. However, he's had an apnea spell each of the last 2 days, which isn't a big deal, but tells us that the 6 feedings a day by bottle are wearing him out, and that the last of the caffeine they were giving him before is almost totally out of his system now. For all us addicts out there, we know that can be pretty hard by itself.

We'll talk to his 'real doctor' tomorrow, but for now we're feeling like it'll be probably 2 more weeks at least before our little guy is headed for home. He'll be 36 weeks of gestation age tomorrow, so we have to keep remembering that he was still meant to be "cooking" for another month almost. The twice a day visits are starting to wear his mother down a bit (we live 25 minutes from the hospital) but we are of course very happy that this is the extent of our problems with our boy right now... many NICU parents aren't nearly as lucky.

While we are waiting, we had our last big silly house party this weekend since that sort of thing will be out for awhile once he comes home, and it was a very nice break in the routine. We're also getting the house and Doug's room ready for his arrival ... our 'nesting' period was a bit thrown off kilter by his dramatic entry into our lives.

Thanks for reading, and we'll try to post more regularly for the home stretch. In the meantime, here's a cute little vid that mommy snuck yesterday before the camera died.




Wednesday, April 16, 2008

Feeder/Grower



That's what they are calling our boy these days. He has no more real medical concerns and is simply working on taking all of his feedings by bottle. He officially moved over to the feeder/grower section of the NICU last night, which is a nice change for us and the last step to discharge. He's up to 5 pounds and 7 ounces and is taking in 4 of his 8 feedings by bottle. I'm still getting to breast feed before two of those feedings and it is going very well. Endurance is the name of the game right now. He just needs to gain the strength to take the bottle more, which will come with time. His doctors say he should be coming home in 2 to 3 weeks. His sisters can't wait to finally meet him!

Sunday, April 13, 2008

Fat n Happy for Mommy's Birthday

First off, happy birthday to Melissa today! Douglas gave her an extra special treat of a gift
yesterday by breaking through the
5lb mark (he's at about 5lb 2 oz already today) AND getting the nasal cannula off so that there is *nothing*, absolutely nothing hiding that sweet face of his.

Maw got to breast and bottle feed him and fully take in the wonder of these suddenly huge, round, sweeter-than-sugar cheeks before we snuck off for a night away at the wonderful Hyatt Lost Pines resort just outside of Austin. While not exactly Fiji, it sure felt like we were a world away, and mommy got to enjoy a 'vacation day' away from the hospital and house for 24 hours, fully able to relax knowing the little man was doing so well.

We grabbed a coffee this morning and left the resort to go straight to the hospital in time to breast and bottle feed again. He's doing this combo-feed now twice a day, and doing two other bottle-only feeds, which makes 4 of his 8 daily feeds tube and machine free. As you can see in the
pix above and video below, its so incredible to get to see his full face during our whole visits, now that the cannula is off. And, as we suspected, he didn't need it at all anymore... he's breathing great and hasn't had an apnea spell in three glorious days.

Suddenly we're in a bit of a fire drill to get his room and the rest of the house ready for our boy to come home... we haven't been told to expect anything sooner than the end of the month, but it sure seems like the way he's going they might send him home any day now.

All fire drills aside for now, we are heading out to a nice dinner with the girls to continue celebrating the birth of the world's greatest wife and mother, before she goes back to the hospital to finish the celebration off with some more one-on-one time with her newest wonder.


Thursday, April 10, 2008

perfect timing (by Aunt Shelley)

lucky me arrived at the hospital with perfect timing today. beautiful baby dougie had just had the biggest poop of his life, all over his daddy. you wouldn't believe the volume that came from this child, a testament to the fact that he is a strapping 4 lb 13 oz (maybe less after that poop) boy that eats and poops like a champion.

this child is a far cry from the frail, tiny boy i met days after his birth- we knew his spirit was strong but it's amazing to see his physical transformation. his body is catching up with his spirit. he's incredible. during my visit he was animated, alert, gooing, smiling, farting- all the wonderful things babies do. best part for me was the poop though. seriously, he s*** all over mike so he couldn't hold him after the nurse cleaned him up. he was far too poopy to hold dougie and there i was waiting with open arms. the lucky first person to hold him besides nurses, maw and paw. wow.

they say timing is everything. i believe it. i spent half an hour chatting up our boy. what could possibly be better? maybe watching mike squirm and gag covered in s*** until maw arrived with a clean shirt. no, that paled in comparison. holding that boy was magic.

******* Being the editor of this here Family-Friendly Blog, I took the liberty of editing Aunt Shelley the Sailor's post a little, and adding the video below, (no idea why it's rotated sideways) where you can see Douglas really checking her out ... his eyes say "You're not mommy or daddy... but you're definitely somebody who loves me." ********* --- Paw



A Note From Tamara


Our dear friend, Tamara Haskins asked me to post her comments after she visited the hospital a few days ago. I also wanted to correct a HUGE misprint from yesterday. Duggie weighed 4 lbs. 11 ounces yesterday, not ten. ;) Today he is at 4 lbs. 13 ounces. I bet he hits 5 pounds by the weekend! He also doubled his intake with the bottle last night. He took in 30 of his 44 cc's and they dropped his oxygen pressure down to the lowest possible setting and he's doing great.

Melissa, I must tell you again how truly adorable your precious little
miracle is. Everything being so tiny makes him even cuter...those lips and
cheeks, the wee hands and that precious pointy ear. He's perfect. I loved
the way he would try his very best to look up at his Mommy. He was so
content there on your chest. He knows he is loved. And you looked so
radiant and happy holding your little man. I'm so glad I finally got to
see him. Of course I'll continue to check the blog daily. After he comes
home and he gets a little bigger I'll show him all the 'tricks' that big
sisters love!!

Love
Tam

Tuesday, April 8, 2008

4 pounds TEN ounces


We're not playin. This little dude is growing like crazy.

He got to do a little bottle feeding this morning, and a little ninny nuzzlin tonight, which will be his new routine for awhile now, as we begin to wean him off of his tube feeding and his breathing support. He's holding his body temp just fine, and self-correcting any apnea spells. We still have a long road ahead of us, and lots to learn I'm sure, but we are definitely in the home stretch of the NICU time, and that is a very good thing.

Check Doug out, checking us out, in the video below.


Monday, April 7, 2008

the threads that weave the net

We'd planned for some time to be in Austin during SXSW last month, and of course Mike and Melissa and the girls were planning to have us stay with them-who would the Wilson's be if not fantastic hosts?

Then we got word about Doug, and immediately thought to beg off. How could the Wilson's possibly handle a house full of guests--among them a 4 month old baby girl--while handling all that was crashing in on them? And on top of it, Mike's biggest work project of the year, that same week? No way, we thought. We'll get a hotel. Something. Anything but be a burden.

But they insisted, and so we came, and what we saw still makes me smile. Not Doug, although he is remarkable and beautiful and a tiny, 4lb. miracle. No, what I'll remember most from that week in Austin was what a real community of love looks like.

It took a while to notice--Mike and Melissa are always preternaturally low key; it must be something in that Cajun water. But they never seemed to be nearly as concerned as we knew they must be.

The answer came a few days later. As we hung around early one evening, first one friend, then another, came in delivering food and desert. It was a simple thing, but powerful: you don't need to worry about food on the table, it's taken care of. Deaven and Halen hardly noticed, so used were they by now to friends and loved ones coming in the door to help their family in a time of need. But it stuck with us--look at that, we marveled, a daily delivery of love, and support. A simple thing, but profound, and all too often missing.

We all hear a lot of talk about safety nets, about how people fall through them. But what we were witnessing was that rare time when people are caught and saved by the safety nets in their lives. And this net was being woven, one meal, one dessert at a time, by threads in the form of their friends. None alone could bear the burden of helping the Wilson's in their time of need. But all, together, bore them so effortlessly that they could relax a bit, enjoy their guests and a temporary distraction from their worries, get on with the business of dealing with our complicated modern lives, and most importantly, giving their son the undivided attention and love that he needs right now.

The generosity of their friends was matched by the Wilsons in receiving it. It is a gift--truly--to give someone the gift of letting them help. Melissa and Mike, in their hour of great need, could have gone the easy, insular route: lots of take out, Domino's on speed dial. But by allowing the people that care about them to express their love and support, and trusting in it, they're allowing that rarest of things--real, genuine community--to spontaneously coalesce around their family. And in so doing, reminding everyone just what it means to really be there for the people who need us, how easy it can be to help, and how good it can feel to be that person.

Tonight, in the hospital, little Douglas Wilson lies sleeping, dreaming. I wonder if that rest is made better by knowing, somehow, intuitively, of the breadth and depth of the love that surrounds him? If as his chest rises and falls, he can feel the soft, unbreakable bonds of the net woven under him, by all the family that claims him as their own?

When my time came last month to see Doug in the hospital, I was awed, certainly, by his small size and frail thin body, though perhaps not too much owing to our own infant daughter. What was even more striking to me, however, were his parents. I couldn't help being surprised by how relaxed and focused they were. Concerned, yes, and certainly very busy, but able to be so in the moment of caring for Doug, and so open too to engaging with others--and I realized that's because just like Doug, they knew that there was someone there to catch them. Namely, all of you.

The threads we all spin, weaving the net of family, of community, of hope in times of trial, reach places we never imagine. Today, here in San Francisco, a similar "Care Calendar" got launched for our friends Tony and Mel, who just had twin boys, inspired by the one created for the Wilsons. Within hours, eight slots were filled up, and by the end of the week no doubt dozens will be. Your actions there are inspiring others, even all they way out here.

So to all the friends and family there in Austin supporting the Wilsons, thank you from those of us who can't be there in person. And thank you for giving them the love they so richly deserve. Doug is a very lucky boy, in so many ways, and growing up in a place like that, amidst people like you, is very high on the list of reasons why.

Sunday, April 6, 2008

A New Bed For Doug



Yesterday when we arrived at the hospital we were greeted with a nice surprise. Baby D had been move from the isolette to a baby bed. He's been maintaining his temperature very well and this is a big milestone for him. They have also lowered the pressure again on his oxygen flow, so he is another step closer to being off of the nasal cannula. We didn't try any bottle feedings this weekend, so hopefully we will start this week. He's up to 4 pounds and 6 ounces and is really starting to fill out his preemie clothes.

Saturday, April 5, 2008

Spring Training!




Doug has had a great week! He's has had very few apnea episodes and they even decreased the pressure on his nasal cannula a bit and he has handled it very well. He is up to 4 pounds and 4 ounces already and we are hoping we can start to feed him a little this weekend. As you can tell from the video, this week of spring training is complete! He's well rested and the binky practice has never been better. We have also started to visit him twice a day, holding him for a couple of hours at a time. He seems to love the kangaroo care and tolerates it very well, sleeping most of the time.